DEBRA Australia – DEBRA Australia is a volunteer based organisation that receives no government funding and relies on donations and grants to deliver their programs. DEBRA Australia assists in improving the lives of children and adults living with rare skin blistering disease called Epidermolysis Bullosa (EB), the debilitating and sometimes fatal condition, by providing necessary support services, medical supplies, aids and equipment, support services, assistance with transition to independent living and research focusing on different aspects of EB.
Epidermolysis Bullosa (EB) is a rare disease whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds.
DEBRA Australia’s Mission is to ensure that people living with EB have access to the best quality support and medical care, while also driving the effective development of treatments and cure for EB. To raise awareness and understanding of EB amongst health professionals and the general public within Australia.